Jayden had his surgery on Friday. It took 11 hours. They started a little after 9:00 am and we finally got to see him post-op a little after 8:00 pm. He has been slowly progressing. He has been on tons of medications and tons of tubes have been coming out of him. One by one, they have been taken away. He now has his chest tubes out, dialysis tube out, a few others I don't remember out, and is now extubated (meaning his breathing tube is taken out and he is now breathing on his own). He is still in a bit of pain, so they had to sedate him a little today. He got the hiccups and cried right after every hiccup. I felt so bad for him and helpless because I could not help him. We have not been able to hold him yet, but that should be coming in the next couple of days. I cannot wait!! We give God the glory for protecting our baby boy. We named him Jayden, which means "God has heard." We believe God has definitely heard our cries out to Him and know he is protecting us and holding our sweet boy in His hands. Please continue to pray for Jayden and his recovery. Thank you so much for your support, love, and prayers!! We love you all!!
Well, we have reached surgery day. They are taking him at 7:00 am to get him ready. This is a 6-8 hour procedure. I cannot even begin to tell you the emotions we are feeling right now. Please pray for sweet Jayden and for him to be strong. Pray for a smooth surgery with no surprises. Pray for the surgeons, nurses, and all that will be working on Jayden. Please pray for Bryan, me, our family and friends as we journey through this day. God is in control and can and will do great things. Thank you!!!
Jayden had a rough night last night and the night before. He has a rapid heart rate, which they call Supraventricular Tachycardia (SVT). They have him on meds now for that. His oxygen level is also low, so they will be watching him closely. The surgery was scheduled for Thursday, but I just got a call from the Cardiologist and they said he was bumped to Friday. Please please pray that it will happen this week and it will not get bumped again. Bryan and I are tired of playing the waiting game, but most importantly, we want what is best for sweet Jayden. He has to work extra hard to breathe so he is just worn out. Feeding also takes it out of him. We are just ready for him to feel better. Please continue praying for our precious boy, but please pray for all the others there, many of whom are far worse than Jayden. Our eyes have been opened to a new experience. It is very humbling. Thank you and love you all!!
Don't know why, but this thing never uploads my pics in the order I want them. I think it's me... The top picture is of Bryce watching video of his little brother and he is waving at him. :) So precious!!
We are so blessed that Jayden is doing so well. Please continue to pray for him. He is most likely having an MRI tomorrow to look more in depth at the heart before his surgery, which will most likely be at the end of this week. I say "most likely" because things are always subject to change and have since the beginning. Thankfully, he is doing so so well!! The nurses keep telling us it is nice to have a "normal" baby to work with. We are praising the Lord every day that he is "normal." We pray that he will continue this path of "normalcy" throughout this entire experience until we go home and actually have real "normalcy."
Praise God for our sweet son, Jayden and for watching over him and us and holding us in His hands every second of every day.
Praise You in This Storm words by Mark Hall/music by Mark Hall and Bernie Herms
I was sure by now,God, that You would have reached down and wiped our tears away, stepped in and saved the day. But once again, I say amen and it's still raining as the thunder rolls I barely hear You whisper through the rain, "I'm with you" and as Your mercy falls I raise my hands and praise the God who gives and takes away.
Chorus: And I'll praise you in this storm and I will lift my hands for You are who You are no matter where I am and every tear I've cried You hold in your hand You never left my side and though my heart is torn I will praise You in this storm
I remember when I stumbled in the wind You heard my cry to You and raised me up again my strength is almost gone how can I carry on if I can't find You and as the thunder rolls I barely hear You whisper through the rain "I'm with you" and as Your mercy falls I raise my hands and praise the God who gives and takes away
And I'll praise you in this storm and I will lift my hands for You are who You are no matter where I am and every tear I've cried You hold in your hand You never left my side and though my heart is torn I will praise You in this storm
I lift my eyes onto the hills where does my help come from? My help comes from the Lord, the maker of heaven and earth I lift my eyes onto the hills where does my help come from? My help comes from the Lord, the maker of heaven and earth
And I'll praise you in this storm and I will lift my hands for You are who You are no matter where I am and every tear I've cried You hold in your hand You never left my side and though my heart is torn
I will praise You in this storm
"My heart is confident in you, O God;
My heart is confident.
No wonder I can sing your praises!
I will thank you, Lord, among all the people.
I will sing your praises among the nations.
For your unfailing love is as high as the heavens.